Zarm wrote:Well, didn't exactly ruin my fay, but just to follow up in the same thread... it is looking very much like Apert's Syndrome. Which is good, and bad; there is a wide range within Aperts. It could mean mental deficiency; it could mean an absolutely normal life. Or something in-between. There are definitely some surgeries in this kiddo's future, largely in six months and a year; but, the Children's Hospital of Philadelphia is second to none, from what I hear, so he'll be receiving great care. God-willing, another week and he'll be home; if all the tests check out and he does well with eating. So we are very much hoping to be all together as a family by Christmas.
There are some definite adjustments here- but once he gets home, we should have a good few months of his just being our baby before we have to worry about the next round of medical considerations.
Thanks for the update. This sounds like more good than bad, all things considered. I'm hoping you'll get to have everyone together for Christmas. You guys are still in our thoughts and prayers. Much love to you and yours. We're here if you need anything.
TyrantGojira wrote:Today I found out my grandpa is on hospice. His health is steadily getting worse as he’s refusing to eat.
I'm sorry to hear about this. I went through something kind of similar when my grandfather had leukemia. It skreeonking sucks. I'm sorry.Added in 1 hour 36 minutes 7 seconds:
Been a rough week and a half. Almost two, now. What I mentioned last Monday (Tuesday?) is still going on. Got worse. Got a bit better. But still going on.
I started therapy on Saturday, and eh. We'll see how it goes. But today kinda has me bummed out. I finally made the choice to get the ball rolling on bariatric surgery (ball rolling, but process starting after the holidays 'cause I'm not eating yogurt and chicken broth on Christmas Eve). But it's kinda got me down because I really don't think I'm going to be able to do this surgery. It's such a radical lifestyle change, but not in like. A good way. So, for example here. They say if you drink one alcoholic beverage, within 13 minutes you'll have the B.A.C. of three drinks. If you get pulled over, you'll fail a breathalyzer test. That's not a life style change. A life style change is not drinking on week nights, and only having drinks socially with friends. I have to take a large amount of vitamins for the rest of my life, 10 minutes between each pill.
Sure, on one hand, these are changes that outweigh being obese. But like, good lord, what if I just want to have a coke once in a blue moon? Nope. Can't do it.
What sucks is I'm not even that unhealthy of a person. My stomach is just large from past unhealthiness and past binge eating issues, now under control, that if I try portion control I feel like I'm literally starving. So, on one hand I do a surgery that would completely limit my life and sure, I'd lose weight but I wouldn't really get to *enjoy* it except yay being skinny. On the other, I'm completely uncomfortable in my body and live a life of constantly fighting to lose weight.
None of this probably makes any sense to you guys, because you don't really know me so you probably picture a 400 pound guy eating donuts, fighting doctors off with a chicken wing. But that's not what's going on. Just kinda bummed.